• Lumisal@lemmy.world
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    7 months ago

    Hi there. Had kidney failure for about 8 years.

    There was this one medication I badly needed to control secondary hyperparathyroidism. Literally used all avenues, and couldn’t get it approved or covered, other than by paying around 800$ for a single dose. I even had private insurance still at the time btw. The alternative was a surgery to remove a parathyroid gland which would then lead me to having other severe health complications if I got a kidney transplant. You know, due to now missing an organ.

    Second treatment in Finland when I was just VISITING, not even a resident yet - "oh, you’re PTH levels are extremely high. We’re going to give you “medicine I’ve been trying to get for months”.

    Just like that. No struggle even. Cost? 25$, and that includes the superior diafiltration treatment (USA only has dialysis, despite it giving poorer quality of life and lowering life expectancy, thanks to lobbying from DaVita.

    Anyway, fuck you 🙂

    • Alex@feddit.ro
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      7 months ago

      I’m really sorry you had to go through all of that, but it’s great that you finally managed to get the treatment you needed.

      • Lumisal@lemmy.world
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        7 months ago

        Less sick than if I had been in the USA 🙃

        Less dead, too.

        Hopefully you don’t end up in my situation. Or maybe it’s better you do 🤷🏻‍♂️

        • RaoulDook@lemmy.world
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          7 months ago

          I’ll be fine, because I have access to quality healthcare here in the USA, like I’ve been saying already.

          You could really use some work on your tact. Perhaps you could get some mental health treatment in your healthcare utopia there.

          I’ll give one tip for free: if you want to gain the sympathy of someone you’re speaking to, you don’t tell them “fuck you” at all, because that is quite tactless.

          • Lumisal@lemmy.world
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            7 months ago

            I’m not trying to get sympathy 🙂 I’m calling out your obvious bullshit with actual examples that shows you’re full of shit.

            You’re so full of shit you can’t even argue against the example given, such as how the “quality healthcare” doesn’t even offer diafiltration. Hell y’all still do the step ladder sticking technique and use fax machines.

            For the average person, healthcare there is partying like it’s 1998. I guess though if you’re a near millionaire it’s pretty good though.

            But I guess I can’t fault you much for being so full of shit - I know it’s hard to schedule and get a basic colonoscopy there too.

            I will say though, I hope you get kidney failure. It’d be for the greater good - not because of your suffering, but it’s clear you’re one of those that will only ever understand once they suffer, and only then would you actually try to help those less fortunate and make the world a better place.